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Positivity only fellow friends!

Neuropathy | Last Active: Mar 27 11:03am | Replies (38)

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@mikead63

I'm like you Ray, every day for me has also been a learning experience. Living in Minnesota I thought I could get seen at the Mayo Clinic. I finally received a response that was a "form" letter saying basically no time and/or no interest is seeing me. I'm beginning to understand their reasoning once I discovered more and more individuals like us finding out there is, at this time, nothing they can do to help me. I guess I don't blame them now but at the time, it was pretty discouraging. At this point I'm just doing a lot of research on how best to cope. It used to be ending the evening with a nice glass of Johnny Walker Black with a sprinkle of water and one or two ice cubes but now, I guess, I can't even do that! So, to end this on a happy note, I have my pup in my lap, the fireplace going (this is Minnesota!) and snuggling with my wife while watching a movie! Life is good Ray! Take care!!
Mike

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Replies to "I'm like you Ray, every day for me has also been a learning experience. Living in..."

Hi, Mike

I took me a while before I realized that my doctors' seemingly blasé attitude wasn't because they didn't care about my condition but instead because they'd nothing promising to tell me, and that was as frustrating to them as it was to me. I, too, continue to look up stuff, sit in on the occasional webinar, but basically I'm done playing the PN grad student. My focus is now 90% on keeping my bod in motion … which is perfect segue to:

@centre paraphrased Claudius in Hamlet, saying so appropriately, "When aches come, they come not in single aches but in battalions." This morning, I'm thinking (and chuckling) "How true, how true!" I have a call in to my orthopedic doc, asking to see him. Along with my PN balance issues and my post-sepsis shortness of breath, as of yesterday I'm having a tough time putting my full body weight on my left leg. Is that the newest battalion to be threatening my castle keep: a hip replacement? 🙂 It never does end, does it? (Until it does … but that's another topic.)

There was a time, too, Mike, when I would end my day with a tumbler of Johnny Walker Black. No longer, though. Much to my chagrin, I had to set down my JWB. I now end my days with a non-alky beer (oh, sigh). We do watch a little TV, though.

Lately, we've been binging on British murder mysteries. I used to wonder why we'd become so fond of them, but then the other day I read that these fictional murder mysteries serve as a relaxing break from the monstrous stuff facing us in our daytime lives. At least, in a fictional murder mystery, things get solved. You begin with a body, you follow the detectives through endlessly complicating complications, and, in the end (an hour later, maybe an hour-and-a-half), some grizzled culprit is handcuffed and perp-walked off to jail. After a long, hard day of slogging through reality, what could be more satisfying? 🙂

Life IS good, Mike! Take care!
Ray