← Return to Surprised and Uncertain: Should I get a second opinion?

Discussion

Surprised and Uncertain: Should I get a second opinion?

Polymyalgia Rheumatica (PMR) | Last Active: Mar 24 11:26am | Replies (36)
Comment receiving replies
@jillkellyauthor

I got a huge runaround from PCP and rheumatologist and orthopedist because I didn't have the blood markers for PMR but there was no other explanation for what I had. Finally I got my PCP to agree that I had PMR and I began titrating up with prednisone from 1 mg over 3 months to 8. I'm now titrating down. There's so much good information from PMR specialists that I don't understand why rheumatologists are hesitant to diagnose it.

Jump to this post

Replies to "I got a huge runaround from PCP and rheumatologist and orthopedist because I didn't have the..."
tuckerp | @tuckerp | Mar 23 6:38pm

I think that they are hesitant because they know very little about the disease. The only treatment for PMR since it was diagnosed in 1957 is prednisone. No cure, No idea what causes it. Like many auto immunes it can vary by patient and treatment. They have data on prednisone and in this case the treatment has as many side effects as the disease. I believe they are reluctant to prescribe prednisone as the treatment knowing that treatment can last for years.

VIEW AND REPLY
randersonccc | @randersonccc | Mar 24 9:21am

I agree. I think they are trying to correlate the data as to why this condition seems to have developed (suspicious of the Covid shot) because it’s not related to injury or trauma or lifestyle. 🤔 myself— mine is directly linked to Covid 19 shot.

VIEW AND REPLY