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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 5 days ago | Replies (656)
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@bacher

I had a SCT 18 months ago at the age of almost 74. I was healthy until my AML diagnosis but did not have any physical issues with the transplant. My current medication is a vitamin pill. However, at this point in my recovery I am still experiencing fatigue. Some days I feel absolutely normal. Other days, I need a nap! I eat well and exercise daily. Is this normal?

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Replies to "I had a SCT 18 months ago at the age of almost 74. I was healthy..."
Lori, Volunteer Mentor | @loribmt | Mar 23 1:15pm

Hi @bacher, Welcome to Connect. Congratulations on your SCT for AML. I’m happy to see you here for several reasons. First, you’ll find a strong support system with many members, including myself, who had a BMT/SCT for MDS or AML. It can be so reassuring to be able to speak with others who have gone through the same process…and we’re at varying stages post transplant…some with a decade + and on down to newbies.
The 2nd reason is another new member, @girlmidget, just joined this morning. Her husband, 73, has MDS/progressing to AML and he’s concerned about going ahead with the tranpslant. So you could be a very good source of encouragement for them. 😁

Your recovery sounds like it’s been right on schedule and at 18 months, you’re pretty much back to normal. From my chats with fellow SCT friends and members here, no matter where we are in our post transplant journey, we have days like you’re experiencing….perfectly normal, energetic, productive days. Sometimes days or weeks in a row! And then whooompf, the wind goes out of our sails and we have a day or more of lounging, napping, reading.
From everything I’ve been told with my BMT at Mayo, this is normal and to be expected. Sometimes related to the SCT itself, and that most of us are also at an age where we would routinely be tired and need a break after many days of working at full speed anyway. We tend to pin causes on our SCT…and rightfully so. Because when you think about it, the transplant became a new marker of our lives. Before SCT and after SCT. Life isn’t the 100%same. But it doesn’t mean worse…just, different. ☺️ Plus we’re alive and enjoying a 2nd chance with life that we wouldn’t have had otherwise.

I’d love to have you tell your story right here in this discussion. It’s a great place for anyone to read about how you came to require a transplant.
You’re welcome to share any tips or words of wisdom that you feel would be helpful or encouraging to anyone going through cancer treatments or the bone marrow transplant process. I started the discusson about 4 years ago when I was almost 2 years post translant. My 6th rebirth-day will be the end of June. By sharing our positive stories we can be lifelines to countless others.

How was your AML discovered?

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