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@cchantiles

I'm going down 1/2 mg per month. If I hurt, I first try 8 hour advanced strength Tylenol.... basically 2 regular t
Tylenol. If I REALLY hurt, I take an extra 5mg to 10mg of prednisone for 1 or 2 days. Usually 2 days does the trick. Then back to regular dose I was taking before the temporary increase. It's like sometimes the body just needs a hug with some extra prednisone and then it's OK. Lol. If it helps, I currently take 200mg of
Hydroxizine in the morning and at night. My Rhemetologist said it would help with the symptoms and help me wean off prednisone. He has/had no set path for me other than to get off prednisone quickly... but no set directions. I am the one who knows my body and I listen to it. 😉 I started back in June 2020 and am down from 15mg to 4.5. I asked him for 2.5mg and 1mg pills so that when I taper I don't have to cut pills in half and then have to worry about if they are the exact amount needed. I keep my old 5mg for the occasional flare and that seems to knock it out. Everyone is different. I consider myself very fortunate as some deal with a considerable amount of pain, and some with clueless and/or uncaring doctors. This is an excellent forum for us all and I pray everyone will one day be pain free. Virtual hugs to us all! 😉

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Replies to "I'm going down 1/2 mg per month. If I hurt, I first try 8 hour advanced..."

"It's like sometimes the body just needs a hug with some extra prednisone and then it's OK. Lol."
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I used to say that I needed a "prednisone fix" whenever I increased my prednisone dose. It is good to retain a sense of humor.

After I realized that prednisone replaces the cortisol that our body normally produces, I started saying that I needed a "cortisol fix" when I took more prednisone. That was more accurate according to my endocrinolgist who diagnosed adrenal insufficiency. She said my body would need to fix my cortisol level and more prednisone wasn't the best solution.

Since I took prednisone for 12 years to treat PMR and other things, my endocrinologist said taking less than 5 mg of prednisone was going to be a tough thing for me to do. I told her less than 7 mg was impossible for me to do.

My endocrinolgist referred me back to my rheumatologist to see if there was something else that would treat PMR.