← Return to Meningioma: Getting ready for radiation, any tips or advice?

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My husbands is a grade 3 as well. He had surgery in 2022 followed by 6 weeks of radiation. They originally graded his at a 2 but later did more molecular testing and put it at a 3. He had cyber knife a year and half after surgery when it started to regrow. He’s been on Atvastin for last year and has tolerated that very well and had good quality of life. It’s only been in the last few months that he’s having significant visual issues from either regrowth or possibly effects from previous radiation. We just met with the radiation oncologist and they hope to do more localized radiation if testing shows that it is definitely regrowth. He’s going to have a specialized PET scan that will show what’s scaring vs tumor. We are trying to keep the faith that a new treatment will be discovered from one of the clinical trials Please keep us updated on how you are doing. It’s reassuring to find someone else on this site that has a grade 3 as most are grade 1 and 2

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Replies to "My husbands is a grade 3 as well. He had surgery in 2022 followed by 6..."

Thank you for your post. I am really concerned as mine is a grade 3. Meeting with the radiologist oncologist tomorrow. Worried that radiation is the next step and don’t know what to expect but I am fearful as I understand that radiation can harm healthy cells as well. I want to have faith but am struggling.