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How do you handle the loneliness?

Caregivers: Dementia | Last Active: May 24, 2025 | Replies (41)

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Exactly. I think there is a common perception by the public that dementia is about a person losing their memories. They have no idea how much more there is to it…..the difficult behavior, repeating over and over, making unreasonable demands, placing things in odd locations, being argumentative for no reason, resisting care, fixating, toileting dysfunction, etc. The caregiver is on constant alert. I suspect that is why caregiving brings so much fatigue. I admire all of you who do it, but years of this have convinced me to pass the baton to someone else. I’ll return here and post all about it. I see it as a good thing.

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Replies to "Exactly. I think there is a common perception by the public that dementia is about a..."

Well said!

Yes. I'm at least like the average American. For decades I thought dementia, like Alzheimer's, was all about memory like "They don't remember who you are." Not even close! In my personal experience it's really mostly about abnormal and degenerative behaviors. It's like the brain is disintegrating in a way.

At some point they need 24/7 care to watch over everything. Most of the caregivers I have seen and know personally are truly the greatest humanitarians. I used to think I was a good person. I don't even come close to their level! They are like angels.