Hi Jean,
Glad you found the group. I was diagnosed with Stage 3 HGSOC in January of 2024. (i am 54 now). Same, thought I was having bloating due to fibroids that were known to me. But, alas, it was not the fibroids. I had 3 rounds chemo, surgery in April, then 3 more rounds of chemo, completed in July. This condition is chronic, something I am learning to live with. I have remained positive, and I am living well with cancer. I have had a reoccurrence already, so I am back on treatment. This one is Elehere, which is a bit easier for me than front line treatment.
In terms of getting ready for chemo, I would also advise the mittens/booties for ice packs for your hands and feet. To help prevent Neuropathy. and, I would say prepare for constipation. Seems to get most of us. I stay hydrated, east lots of fruits and veges, but still rely on Senna as part of my daily routine.
I would say, live your life as best you can. None of us know when its our time.
In terms of other support groups, Mayo has a GYN support group via zoom, you can find the link to register on this page.
I also appreciate the OCRA groups, there is one for newly diagnosed, and it is just another way to connect with other women in similar situation. you can find the link on this website under Support, you will have to register and use zoom. I attend this one weekly, and appreciate the support.
Take good care.
Kristin
https://ocrahope.org/research/