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How do you handle the loneliness?

Caregivers: Dementia | Last Active: May 24 7:18am | Replies (41)

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@baj

We had a senor marriage 13 years ago - I'm 77 and he is 74. He has dementia, is an insulin-dependent diabetic, is blind in one eye with 20% vision in the other and has Congestive Heart Disease (he just got out of the hospital yesterday).
Apathy (not interested in the stuff he used to do) is increasing, and paranoia - he has, out of the blue, accused me of trying to kick him out. When he asks me something, and I explain it to him, he accuses me of making stuff up or lying. We had just bought a hospital bed and converted a bedroom for the future when he needs more care. He also prided himself on his intellect - he was a social worker in the past - but he is losing it. He is more confused at times. I guess the whole thing is part and parcel of the entire thing. My friends keep in contact, so I am not isolated. I, too, have mobility and lung issues. I do not go anywhere without him. He goes to bed at 10 PM he is up at 8:30, and I go to bed at 1-2 AM and up at 10ish to have some quiet time without him. He is a talker and expects me to be at his beck and call all day. Sometimes, I want to stay in bed, cover up, and sleep all day.

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Replies to "We had a senor marriage 13 years ago - I'm 77 and he is 74. He..."

Now we're really getting down to it. I have an aortic aneurysm and rheumatoid arthritis, plus all the other infirmities that come with age. When I hear other people's stories--like yours--I feel both relieved that my situation isn't that dire yet and so sympathetic for what people are facing. It's so hard trying to have a sensible conversation, by which I mean a conversation that makes sense, when the responses are so off the wall. I did convince my husband to sleep upstairs in a separate room so I could get the sleep I desperately need. Every night we go through the same routine: a big hug, then I get in bed to read while he watches some TV. Then he comes in for a goodnight kiss. This all sounds charming, right? We say good night and he moans about how he'll never sleep in our bed again and I'm kicking him out. He leaves. I read. He comes back and we go through everything again. I think this time I'll be able to settle down. No way. In he comes again, same routine. Finally, when he's ready to go upstairs, he makes one last appearance. I can see the raised eyebrows as I write this, but these are the sort of apparently trivial, petty things that drive a person to distraction, like a Chinese water torture. Who'd have thought a drop of water could be so dreadful? If you've been through it, as you have, you know. If you just hear about it second- or third-hand, you don't understand the full tragedy. At least here I don't feel I have to pretty up the truth. That in itself provides some relief.