Why did you have a CT/Pet in the first place? Did or do you have symptoms? You may or may not have surgery right now. There are teams of doctors that specialize in this type cancer. Did the pathology report come back as positive for NETs also? That can be critical because some insurance cos. want it verified under a microscope. I have NETs in the mesentery/small bowel also. I'm on a monthly injection called Lanreotide. Many people here on it also. This type cancer can be very slow growing. People can live a long time with it. Good luck.