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@jowilliams1

I have been on Opdivo since 12/30/24. I get it every other week. It hasn't been bad at all. My only real side effect has been the recent shut down of my thyroid. I started medicine for that a month ago but am experiencing some real fatigue now. Hopefully that will improve. I had a CT done yesterday and will see the oncologist on Monday morning. Mine was high grade urothelial carcinoma with focal squamous differentiation. I've done lots of genetic testing in the event it returns to help them know what the next steps might be. I'm regularly doing Natera testing every 3 months too. Are you doing the Natera testing?

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I have never heard of Natera testing. I asked about a genetic testing but they told me a CT scan is just as good; even though I have read it is best to have a genetic test to know your body and what would probably help it better 🤷. I am going to ask again when I go on April 1st for a blood test and to go hear about the immunotherapy treatment planned for me. My original pathology test said I had high-grade urethral carcinoma with extensive squamous cell differentiation, but it was redone and came back as Pure Squamous Cell Carcinoma, which apparently chemo nor radiation can help with. I was also told with the immunotherapy I could have thyroid issues and if I did I would need to take supplements for that. That is just one of the issues that may arise but he said it is good to have something happen as it apparently means it is working. Thank you for telling me about your experience, I am very worried about going back to work before I know how I might react to the immunotherapy. I am on STD which ends on April 17th and if I continue, it would then change to LTD (long term disability)