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I'm so sorry "Payette". I too feel totally blindsided and I'm losing confidence in my pulmonary and worried about my local ID doctor who suggested 3 meds one being Tetracycline. She also said she would like to talk to doctors at NJH. I've read the Mycobacterium Abscessus is highly resistant to Tetracycline-which is why I'm worried. I won't get into NJH until May 20-30. They are testing my sputum but Banner already has as well. My strain (or substrain?) has the active erm gene (spelling?), so no macrolides. I also have one cavity but would not be surprised if I have 2 or more by now. I'm with you, I was really surprised about the 8 week clearing. I just need a doctor that is sure about which treatment I should start. I wish everyone the best.

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Replies to "I'm so sorry "Payette". I too feel totally blindsided and I'm losing confidence in my pulmonary..."

NJH seems to be the gold standard for expertise. Hope they set you straight. This stuff is SO complex.

@kathyjjb
Kathy, where are you located? I'm in Phoenix and going to Dr. Iusum at the Banner Lung Inst.
I have Mycobacterium Abscessus. We think I got it from running a humidifier in the bedroom at night using RO water. I've now turned my water heater to high. Water is coming out at 150 degrees. I'm hoping to kill any bacteria in it since this is in our water supply in Phoenix.
NJH is supposed to be the best in the country. I wish you well and hope you can find a drug therapy that knocks it out quickly for you. Best of luck to you.