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@staylorrn2000

I now have Adrenal Insufficiency from being on Prednisone for a year. My Endocrinologist says there is no proven safe way to taper or to avoid an adrenal crisis and is really all over the place with the instructions she gives me to taper. Now she says I can try staying on 5 mg and 2.5 mg every other day for 3 months then see her again, or try 4 mg for 3 months and see her again, she left it up to me! Neither of these make any sense to me. She also says there is no lab test for adrenal insufficiency that is really accurate. I feel very defeated because I can’t go anywhere else for a second opinion and I desperately want off of prednisone but I’m also now terrified of an adrenal crises because of the severity of the symptoms I have when I try to go below 5 mg. Has anyone been in this situation?

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Replies to "I now have Adrenal Insufficiency from being on Prednisone for a year. My Endocrinologist says there..."

There is something called a “dead slow taper”
1 day new dose-6 days old dose
1day new dose-5 days old dose-and so on for 4,3,2 and 1 days.
Next 1 day old dose-2 days new dose
1 day old dose 3 days new dose
1 day old dose 4 days new dose
1day old dose 5 days new dose and continue this pattern. There are some people in my support group that use this.

Very sorry to hear what you’re going through. Of course follow the best instructions you can get from the best doctors. Just a few things I wanted to say based on what my drs have said in the past. I don’t think it’s true about testing for adrenal insufficiency. There are two tests, a morning cortisol test and then a more specific test that should help you. Any possibility you can see an endocrinologist?