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Trying to decide about Evenity

Osteoporosis & Bone Health | Last Active: Mar 22 11:15am | Replies (18)

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@missey

Any medication that has a black box warning on it should be seriously reconsidered for use. My Endocrinologist didn’t even know there was one on this medication until I pointed it out and then she tried to convince me to take it anyway, I would rather be on another their medication and alive than even taken the chance I was going to have a stroke or die because of it. I don’t care how rare this occurrence might Happen I am not going to be one of those statistics

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Replies to "Any medication that has a black box warning on it should be seriously reconsidered for use...."

If you read my post you can see that I completely agree with your stance and it is certainly within your rights to refuse a medication for any reason. Face it, many modern medications will help to manage, but not cure diseases and many come with calculated risks and a boatload of adverse reactions. We must decide what, if any, risk we're willing to take to add life to our years.

Bottom line: Choose your poison, and choose it carefully. I made an informed - and the right - decision for myself with Evenity, full well knowing the risks, and I can't unring that bell. I fished what I wished - excellent DEXA numbers post-Evenity. By the way, Tymlos initially had a black box warning, which has since been removed, for osteosarcoma risk.

Here's a funny story. In October, 2024, while attempting to navigate an extra high curb, my sneakers (darn rubber toe caps) caught the edge of the curb and threw me down on my left side, sprawling onto the sidewalk. I was able to jump right back up and after a quick assessment, started walking. The next morning, I figured I should go to the ER to make sure everything was still in place and working properly. X-ray results: Boxer's fracture in my left hand, but no frax in my hip or femur! So that's a big win for me. Don't know how that might have turned out if not for Tymlos and/or Evenity.

All the best! Cheers!