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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Apr 17 10:23am | Replies (671)
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@drawlings0803

Hi Lori -
Wanted to update you on my visit with the new hematologist yesterday.
Well I absolutely loved him! He explained my MDS-MPN is most likely related to my chemotherapy treatments years ago. That said, he said let’s go forward with treatment.
I will start chemotherapy with Dacogen on March 31. I think I’ll have 3 rounds of that. It’s 5 days in a row, then I take a break for maybe a month (I think). Then, he said definitely a BMT would be done. That’s several months away right now.
I felt so much better after visiting with him yesterday and although it’s scary facing chemo again, I’m optimistic and very happy there’s treatment for me.
Any advice on your BMT experience would be appreciated!!
Thanks and hope you have a great weekend!

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Replies to "Hi Lori - Wanted to update you on my visit with the new hematologist yesterday. Well..."
Lori, Volunteer Mentor | @loribmt | Mar 22 4:59pm

Hi @drawlings0803. I’m so glad to hear you had such a great visit with your new hematologist! Having someone that you feel is in your corner can make all the difference in the world.
The treatment plan is pretty standard with the goal of getting you into remission so that you can go ahead with the BMT. You’ll have a BMT team who will take excellent care of you wherever you’re having the procedure. And you have me, along with other members like @katgob who have had a BMT for MDS who will walk you along the path from the other side of the computer.
When you get closer to having a target date for the transplant we can talk more about what to expect, how to plan for an extended stay at a clinic, the transplant itself and recovery. It all feels intimidating, I know. But this is doable and gives you an all important second chance at life. Makes it worth the few months down time. Lots of lounging. ☺️

I hope you have a great weekend now, too! I always feel better and encouraged when I have a plan that allows me to move forward. I think you’re feeling that too.
Are the infusions at the clinic that’s 40 miles away or are you able to have that done locally?

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