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@thmssllvn

I learned a valuable tip from watching the videos on You-Tube produced by the prostate cancer research institute (pcri.org). ''You may know more about your disease than the doctor." That was from a medical oncologist who has limited his practice to the prostate for twenty years! I can personally attest to being more informed than two clinicians. First the radiation oncologist did not know about the PROStox test by MiraDX. It is a genetic mouth swab test to determine whether the External Beam Radiation Therapy [EBERT] called SBRT poses a greater risk for delayed urinary tract symptoms. (RTOG>2). My $500 out of pocket test result showed that I had a LOW risk. Apparently 10-15% may be at HIGH risk.

Example 2 The medical oncologist was unaware of a study that 6 months of ADT was similar in results to 24-30 months [82% vs 88%) with high intensity radiotherapy. He looked it up on his smartphone and said we'll revisit our plans at six months if the ADT is tolerated. No ego involved. What I am emphasizing is to be proactive on the knowledge front. To quote 'Condoleezza RICE who paraphrased RR," Distrust and verify!" Maybe that is too strong but recommendations must be seen in the context of financial incentives of the employer. Well over 80% of providers are corporate.

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Replies to "I learned a valuable tip from watching the videos on You-Tube produced by the prostate cancer..."

I am a little puzzled by this “ PROStox test by MiraDX”.

If you are having SBRT for bone mets, Then the radiation won’t be getting anywhere close to your bladder or other urinary organs to cause urinary problems. Is this test just designed for people who are having radiation on the prostate?