Hi @katgirl

Oh, gee, how much time do you have? In no particular order or severity, some of them 24/7: RAPID heart rate (120+), nausea (Ondansetron didn't help), bone pain in my butt and lower back that subsided after about 5-10 minutes post injection, ankle pain (felt like a broken ankle), chest and rib pain (couldn't take a full breath/felt like a heart attack), pain in my lower left side, s-e-v-e-r-e back pain (steroid-type injections did not help for the most part and can be anti-OP), excruciating pain at the tops of my shoulders and pains in my hips (subsequently diagnosed as sciatica - part of the whole compression fracture saga and relieved to a large degree by a chiropractor), weight gain in odd places, sleeplessness - likely due to not being able to get comfortable . . . and last but not least, recurring GERD likely from taking more acetaminophen and ibuprofen than I should have. My doctor knew about most of these adverse reactions in real time - so he wrote a script for physical therapy!!!!

Tymlos caused me to visit the ER twice, a pain specialist several times, a spine specialist, PCP for a physical and Lyme disease test, rheumatologist, physical therapy, extra visit to my cardiologist, and messages to docs and staff; all cost time and money with little to no relief.

I was a mess, physically and mentally, for most of the 9-1/2 months on Tymlos. Even if I had known about beginning the treatment with a lesser dose, I'm not sure I would've done that. My DEXA numbers post-Evenity are great, but because my rheumatologist would not order a DEXA before or after Tymlos, I don't know if I went through hell to get my gains or if Evenity is the hero.

Rest assured, not everyone has these reactions, as you can see from reading members' posts; I drew the short straw with Tymlos. I should've refused to continue Tymlos when the odd and constant issues began. If you visit the Tymlos website and look at the list of adverse reactions, some of them are ones that I reported . . . Oddly enough, one of my strengths is to advocate for myself - not sure what went wrong here.

Remember, you asked . . .!! 🙂 Whatever med you choose, don't be afraid to ask questions and speak up if something doesn't seem quite right. Cheers!!