Tanya, I had the exact same experience with the leakage so bad while having the catheter so I can empathize. It was very frustrating. They want you to walk around but the last thing you want to do is that when you're leaking so badly.

Since the removal I've done exercises three times a day. I've never missed a time and at 4 months post surgery I'm really happy with my progress. The only thing I can't do yet seems to be run (for my ringing phone🤣, I'm not a real runner). I continue to do my exercises though. So keep doing them and you'll get there!

I haven't had any problems with my neobladder. I set an alarm throughout the night to get up to use the bathroom regularly. My surgeon doesn't want the bladder to overstretch so that it works better. I'm used to waking up now (it's kind of like having a newborn baby... you get used to it). I'm so thankful I was able to go this route.

I'm doing immunotherapy now for 1 year. If you don't mind me asking, did you get the all clear or have any nodules positive? I had one of thirteen positive and a positive margin unfortunately. I hope your pathology report was better.