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Bladder Cancer Group: Introduce yourself and connect with others

Bladder Cancer | Last Active: 4 hours ago | Replies (288)
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@buena

Thanks for the kind words and golf invitation. Courses here in Rochester are beginning to open, but March can be a snowy month in Minnesota. I played in snow in my younger years, but wiser now. Hope your BCG treatments chase those cancer cells away. Also hope you have access to our Mayo Jacksonville facility. Thanks again for your well wishes.

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Replies to "Thanks for the kind words and golf invitation. Courses here in Rochester are beginning to open,..."
tom26 | @tom26 | Mar 25 1:04pm

Hi all,

I am new to the group and wish I had known about this 7 years ago. I am an avid biker and after a long bike ride back in 2018, I saw blood in my urine. The local urologist I went to said he saw a tumor in my bladder. I was shocked as this does not run in family and am very healthy.
The surgeon removed the tumor which was a high grade but had not gotten into the bladder wall. I can thank the lord that it was detected early. Another month and it could have been a different recovery. I started BCG treatments for the next few months and made it through 90% until my body started to reject them.
Bladder was monitored via cystoscopy over the next 7 years, every 3 months , then 6 months and last 2 years it was yearly, all negative. It was starting to feel like I had gotten past this and my dr felt the same.
However, this last month, the scope revealed a small growth on the back wall of my bladder. After 7 years!!!
The surgery was yesterday and we are waiting on the pathology report to determine the next steps, bCG or other immunotherapy.
I wonder if there are any case studies or data to support using bCG as a preventive. The prior year, the scope was clean.
Has anyone had similar experiences?

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