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@dlydailyhope

@megana2017
Have you had a recent MRI of your brain and full spine? Do you have the white lesions throughout your spine? Does anything else show up in your spine compressing spinal cord or nerve roots?

Has your neurologist considered whether this is a form of epilepsy/seizure? Have you had extensive neurological bloodwork and EMG/nerve conduction studies of upper/lower limbs?

Have you had your hormones checked and do you have any deficiencies or toxicities in your bloodwork?

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Replies to "@megana2017 Have you had a recent MRI of your brain and full spine? Do you have..."

Oh my gosh thank you so much for responding! I'm pretty scared.
I've had some of those, MRIs and blood work.
Brain MRI: Impression
Mild small vessel ischemic changes. No evidence for hemorrhage or acute territorial infarction. Scattered white matter disease. The distribution of these white matter lesions are not in the typical pattern for multiple sclerosis.
Cervical MRI: no T2 abnormalities.
C5-C6: There is broad disc bulge with effacement of ventral subarachnoid space. There is right foraminal narrowing without spinal stenosis.

C6-C7: There is right paracentral disc bulge eccentric to the right. No spinal canal compromise or foraminal narrowing is noted.

Blood work:
NMO negative
DsDNA < 10
C3 and C4 compliment normal
CRP high
CBC:
Hematocrit, MCV, MCH all high (I also have homozygous hemochromatosis)
MCHC is low

I'm guessing the EMG/nerve conduction studies of upper/lower limbs is probably high priority?