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MAC & Bronchiectasis | Last Active: Mar 29 9:10pm | Replies (35)
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Heather,
Your situation sounds very similar to mine. I waited years to treat MAC because my doctor thought the treatment of the disease was so terrible that I should put it off as long as possible. For me, the terrible fatigue and malaise of the disease was way worse than the Big 3. It took me a year on the antibiotics to start feeling better because I had waited so long to treat. At your young age you need to treat this disease before the damage to your lungs gets worse. The antibiotics are not easy and for some are intolerable but in my case the disease was killing me and the antibiotics saved me.
Replies to "Heather, Your situation sounds very similar to mine. I waited years to treat MAC because my..."
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Thank you for advice , I live in a small town and don’t have a lot of options for ID or someone experienced in this diagnosis. the ID that I saw a month ago told me “ I didn’t look sick enough for treatment “ but be also didn’t have all my cultures back , which he assured me would come back normal. He also thought my symptoms were strictly related to other issues so it’s good to hear someone suggest treatment / antibiotics. I made alot of excuses for my progressing symptoms either to stress or not exercising , so some of it is also my fault.