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Acoustic Neuroma: Auditory symptoms are overwhelming

Brain Tumor | Last Active: Mar 24 2:47pm | Replies (27)

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@kathrynschmitz

I was diagnosed with an acoustic neuroma in July of 2024. I was referred to Mayo Rochester and told to get a hearing aid for my right ear and take the "wait and watch" approach, as the tumor was small at 11 mm. In Feb. I had another MRI. The tumor did grow 2mm. I can choose to have the gamma knife (I would lose hearing on the left side) or wait another year. If it is still growing, they would do the gamma knife at that time. My symptoms were better for several months last summer, early fall but are back in full again. Has anyone found anything that helps? I have constant ringing, hearing different tones of a whistle type sounds, have the feeling of pressure/fullness and bouts of dizziness and balance issues. More recently I have a dull ache in my left temple area, too.

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Replies to "I was diagnosed with an acoustic neuroma in July of 2024. I was referred to Mayo..."

I’m also a Mayo Jax Fl patient. I had Gamma Ray done a year ago February. My hearing in my left ear is totally gone but the tinnitus is bad. I use small bud in my left ear at night with white noise to distract the left ear noise. I wear a hearing aid in my right ear to help and now a Bi-cross in left ear. Sounds on left side transmit to right ear aid. I was 76 when diagnosed and in excellent health but the surgery is extremely long and involved and not recommended for me.