@jeanknoll986 Yes, you have found the support group that I hope will be what you need. Welcome to Mayo Clinic Connect and to our group. Like you I was in my late 50’s when I was in menopause but then had spotting at age 67 that I knew was not normal at that age. Like you I had a hysterectomy with fallopian tubes, ovaries, and cervix all removed. I was diagnosed with endometroid adenocarcinoma FIGO Grade 1, Stage 1a. Pathology staged me at 1a. I did not have chemotherapy but I did have radiation therapy (external and internal) after a recurrence two years later.

There are members here who have experienced chemotherapy. I’m going to tag a few of them and hope they can provide you with some helpful information @denisestlouie @valentinaz @mommacandy @val64

Yes, it’s all a shock, isn’t it? And certainly nothing any of us expected.
When do you start chemotherapy? Do you know what kind of chemotherapy? Two hours away is a long drive. Will you have someone with you to help you with the drive and to keep you company at your infusion center?

Hi Jean, @naturegirl5 tagged me and I'm so glad she did! Your story is similar to mine: I also was prescribed chemotherapy for six rounds every three weeks. This was in late 2021, and I'm entering year four of surveillance. Do you have someone to accompany you to the chemo sessions? I was very lucky to have my husband with me, and I hope you'll have someone, too. You're right: it's not "fun," so take all the support you're offered! I mean EVERYTHING 😊 Whatever folks want to help you with, say yes. Please let us know when you begin your treatments and how it's going, okay? Cancer is a rotten club to be part of, but I've found the people here to be kind, hopeful and helpful. Wishing you all the best.

I too have a very similar story. My initial diagnosis was Figo Grade 1 Had a total hysterectomy with a pelvic wash and lymph node dissection The pathology report came back and I have cancer on my pelvic wall No lymph node involvement and other signs were good . I start chemotherapy in two or three weeks and have a total of 6 treatments initially every six weeks. I am concerned anxious scared but ready to start the journey Any advice encouragement I can get. Also any information questions etc would all be much appreciated

Hi Jean,
Glad you found the group. I was diagnosed with Stage 3 HGSOC in January of 2024. (i am 54 now). Same, thought I was having bloating due to fibroids that were known to me. But, alas, it was not the fibroids. I had 3 rounds chemo, surgery in April, then 3 more rounds of chemo, completed in July. This condition is chronic, something I am learning to live with. I have remained positive, and I am living well with cancer. I have had a reoccurrence already, so I am back on treatment. This one is Elehere, which is a bit easier for me than front line treatment.
In terms of getting ready for chemo, I would also advise the mittens/booties for ice packs for your hands and feet. To help prevent Neuropathy. and, I would say prepare for constipation. Seems to get most of us. I stay hydrated, east lots of fruits and veges, but still rely on Senna as part of my daily routine.
I would say, live your life as best you can. None of us know when its our time.
In terms of other support groups, Mayo has a GYN support group via zoom, you can find the link to register on this page.
I also appreciate the OCRA groups, there is one for newly diagnosed, and it is just another way to connect with other women in similar situation. you can find the link on this website under Support, you will have to register and use zoom. I attend this one weekly, and appreciate the support.
Take good care.
Kristin
https://ocrahope.org/research/