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Positivity only fellow friends!
Neuropathy | Last Active: Mar 27 11:03am | Replies (38)Comment receiving replies
Hello!
I believe I'm alble to report positive results. I was diagnosed with large-fibre PN by my first EMG in the summer of 2022. At the time, I heard my neurologist speak the two words we least want to hear: "incurable," and "progressive." Since mine was large-fibre, meaning no or minimal pain, the neurologist went on to say, "Ray, there's really not much I can do for you (I appreciated his honesty), other than to advise that you keep your body in motion."
I took his words to heart. I created a simple mneumonic: "KIM," meabing Keep It Moving. Whenever I catch myself falling into a lethargic state, I'll say aloud, or jot on a scrap of paper: "KIM," and like magic, I'm up and moving, whether to do some prescribed isometic exercises or just to tidy up the kitchen, long enough to know I've hit a lick any any possible PN progression.
Have I found any proof in the pudding? I have. I had my second EMG a few months ago, and when it was done, the neurologist said, "I see no progression, Ray. In fact, there appears to be some improvement. Whatever you've been doing, Ray, keep doing it." And what's that? It's "KIM."
Cheers!
Ray (@ray666)
Replies to "Hello! I believe I'm alble to report positive results. I was diagnosed with large-fibre PN by..."
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Hi Ray- great to see your name, hope NJEd chimes in.
Hi Connect friends, I went down to the PT that puts rocker plates in my neuropathy leg shoes (soleus muscle is poorly innervated, poor push-off during walking, rocker plate gives a mechanical assist for step-through).
I get a computerized gait study when there, every two years, the PT was astonished that I had 30% improvement in the push-off strength and elongation in the pressure line graph (tracks pressure during step-through from heel hitting to ball of foot push-off).
I’m following KIM (love that), walking every day, doing the PT home program 3x weekly, doing the exercise bike (thanks to John Bishop for that idea).
The health issues with growing older keep coming- “ not as single soldiers, but in battalions” - I wrote that down when you posted it and keep it on my desk, makes me laugh.
I went to my 53rd high school reunion (COVID delayed the 50th). The poster board showing classmates who have passed was startling. The memory of that has made me remind myself how wonderful it is to be alive and able to find enjoyment in life, even if it’s just seeing out my kitchen window that the robins are returning now!!