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How do you handle the loneliness?

Caregivers: Dementia | Last Active: 1 day ago | Replies (25)

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@IndianaScott

Hello, @tooyoungforthis Nice to e-meet you here on Connect. I'm Scott, my wife was diagnosed with brain cancer at 48, and I was her sole caregiver during her 14+ years war. I'm glad you found Connect.

While I'm not familiar with what EOD is, I can certainly understand your frustrations with caregiving and the often-illogical manifestations caused by brain damage. I found Connect specifically due to the isolation caused by caregiving.

You asked how people get through this so I wanted to respond to you on that. I know each of our loved one's
and their caregiver's journeys are unique, I'm happy to share some of what worked for me.

First, I embraced the AA mantra of "One day at a Time". My goal each day was to complete that day and try not to worry beyond that. I also let many of life's more mundane tasks fall by the wayside as the demands of caregiving and my wife's needs increased. In an effort to have some socialization, I joined Connect and began reaching out to some old friends and others by writing letters and or emails, which I could do at very odd hours, which helped me a lot.

I'm happy to share other ideas if you think they could help.

Strength, Courage, & Peace

By the way, would you mind telling me about your husband's EOD so I can learn?

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Replies to "Hello, @tooyoungforthis Nice to e-meet you here on Connect. I'm Scott, my wife was diagnosed with..."

EOD - early onset dementia. The disease he has is called CADASIL. It’s a rare genetic disease that manifests itself in so many different ways that no 2 people are alike in their experiences. He could live for another 20 years or he may die tomorrow. We live with a ticking time bomb.