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Was it difficult to determine if your paraganglioma was active?

Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (14)
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@fas

@gangcarotid1 I agree Mayo is very responsive, I was thinking end of April but actually they let me know 2 days ago that my surgery is April 2nd! So, it's exciting and not yet scary (I am sure I will have a freak out the day before!!). Just trying to focus on eviction of this unwelcome trespasser and getting back to 'normal' although as we both agree this is TBD...
I STILL have a hard time wrapping my head around the fact that not only do they (doctors) think it is not secreting they also believe all my 'symptoms' are not linked!!!

I guess we will soon find out....

Anyway, I agree it is lovely to communicate with someone else in this situation. Thanks 🙂

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Replies to "@gangcarotid1 I agree Mayo is very responsive, I was thinking end of April but actually they..."
Colleen Young, Connect Director | @colleenyoung | 3 days ago

@fas, I just read that you had surgery yesterday. Just wanted to let you know that I'm thinking of you as you recover. I look forward to hearing your update when you are willing and able.

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