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What were your symptoms of pancreatic cancer?

Pancreatic Cancer | Last Active: 3 days ago | Replies (27)

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@199

You sound like an RN. I am a "retired RN". I had mid back pain only & that was attributed to arthritis (DJD) of my spine, like what did you expect. I did have some indigestion but at 72 (then) that could also be diet related. When I got a CT for having been off smoking for 15 years & then there was a something going of with my pancreas, maybe, I got a PET scan & as you say, very long wait to see GI so I contacted Mayo in Jacksonville, FL. They got me in quickly! Did some tests & confirmed my dx of Pancreatic cancer stage 4 inoperable. After I saw my local oncologist and had my port installed, I finally got calls from GI in the area. Try Mayo! You would advocate for your patients! Advocate for yourself!

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Replies to "You sound like an RN. I am a "retired RN". I had mid back pain only..."

I was diagnosed with stage 1 pancreas cancer last year my symptoms were everything I ate I would get pain in the sternum area that would shoot to my back. Could not lay down it would hurt worse used a heating pad to sleep on . After having chemo 8 treatments and then radiation and taking a chemo pill 28 days of treatment. Had Whipple surgery in October of 2024. Everything went well surgeon said he thought he got it all. Took out 21 lymph nodes 4 came back cancerous. But while I was open the shot me with radiation. Then I went in for my 3 month CT scan and it came back that it had went to my liver 5 spots . So I started chemo again this time I went on Gemcitabine and Paclitaxel. Just had a CT scan on March 12th found out that this chemo regiment is not working ended up with a couple more spots on my liver. Knock on wood it hasn't went anywhere else just the liver. So I am going to start the first chemo regiment that I was on when this all started. Which is Oxaliplatin,Leucovorin,Irinotecan, and Fluorouracil . Also seen the clinical trial Doctor and found out it's a rear type of cancer I have. He said that there is a new trail coming out that he thinks would be perfect for me. And if that one doesn't work there is another one coming out soon. So don't give up they are coming out new things every day. Stay positive!

Yup...RN , worked since graduating in 1970.... just retired last year.In Cleveland area...UH and Ccf pretty much only options ..Will call Monday to see if I can get in sooner.Just this weird pressure under my sternum, unrelenting and all the other symptoms I mentioned ,along with sob and a cough.Did not know which one to address first.Thought to keep myself breathing first ..Thanks for the professional push!