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Was it difficult to determine if your paraganglioma was active?

Neuroendocrine Tumors (NETs) | Last Active: Apr 5 9:48am | Replies (14)
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@fas

@gangcarotid1 So weird about the nose dripping!!! I also have that...it is so weird and embarrassing but just one of many symptoms - I share almost all your symptoms apart from flashing lights. I have surgery scheduled for removal and just hope that having it out will eliminate these symptoms but no one is able to confirm that...

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Replies to "@gangcarotid1 So weird about the nose dripping!!! I also have that...it is so weird and embarrassing..."
gangcarotid1 | @gangcarotid1 | Mar 20 2:14pm

Mind-boggling... huh!
Looking forward to comparing our progress process through this! Like you, I'm wanting these bizarre mix of symptoms to just Go Away after the tumor removal, but no verification given to me either. My kidney tumors they removed in Oct were tied to the paraganglioma; best way they could tell was, my high BP went away. However, 3 mos later, the diastolic part of my BP started jumping.
Tiring of all this; I just want my life back. Best wishes to you and your family on this expedition.

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