@britb88 Welcome to Mayo Clinic Connect, I echo what @johnbishop said. Ask to be placed on a cancellation list, and grab any appointment you can! If there is more than one rheumatologist in the practice, perhaps you can be on a cancellation list for both of them?

Lupus is a sneaky condition, and they have called it a "constellation" disease. I was diagnosed in 1988, and went through many different tests before getting to the end. My symptoms may not be yours, and vice versa. Our bodies are indeed miracle machines, and how they respond to different stimuli is astounding. For me, the sensitivity to sunlight, joint pain, mottled skin, fatigue and headaches are common, but I also have other health issues. So, is it my Lupus kicking up or something else? That is always a question I ask myself. I know you are frustrated.

Keeping a journal of your symptoms might help you understand when they are triggered, and show you and the doctors a pattern. Can you do that? And a side benefit is that you might understand even better what is going on, and ease the frustration.
Ginger