Kathy, Welcome to the group. I wish you all the best in the journey--it sounds like you've found a place of acceptance. Of course, there may be twists and turns ahead!

Regarding the CA 19-9, my oncologist has said that some folks aren't "secreters", i.e., don't produce that antigen. This is from the Pancreatic Cancer Action Network website:

Not every patient with pancreatic cancer will have a high CA 19-9 level.
Some conditions other than cancer can cause high CA 19-9 levels.
The CA 19-9 test cannot be used to diagnose or screen for pancreatic cancer by itself. Instead, doctors often use it to judge a treatment’s success.