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DiscussionMore complications and saline/neb
MAC & Bronchiectasis | Last Active: Mar 22 10:14am | Replies (5)Comment receiving replies
Replies to "Thank you for your response Lilliana. I live in Indiana so it is usually over an..."
I am terribly sorry you are going through this as am I. This morning, as I brace to write a very long letter to the ombudsman at Kaiser Permanente in San Rafael, CA, I was reminded that I need to stay calm in the midst of the ordeal ahead with intentional stress release, meditation, deep breathing, bodily relaxation techniques and also prayer in my case. It is so demoralizing when doctors don’t do their job, but we need to stay strong to maintain clarity of mind and emotional health as we navigate ignorance that directly impacts our disease progression. Know that you are not alone, and that advocating for oneself requires a foundation of equanimity. And bravery that comes from accessing that reservoir of well-being within us and the support of kind and generous people like our community here.