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Caregiving: Anyone else doing this alone?

Caregivers: Dementia | Last Active: Mar 22 8:00pm | Replies (89)

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@jwright726

I cared for my sweet Mom from 2015 to 2021. She passed away 2 weeks after her birthday on Thanksgiving weekend. I have 2 brothers. One lives in Texas and works all the time. He offered me some support over the phone. My second brother became a problem. He watched my every move since I was taking care of mom's finances. I moved back home with her. She raised 3 kids there and had been there over 60 years. I lived 40 miles away and my only son moved back to my home while I was away. Being the only girl my mom's care was my sole responsibility 24/7.
The Home health care workers were horrible. Some just watched me do everything. Some were to harsh with mom. Some just acted like they didn't care. The agencies started treating me like I was the problem. So I installed cameras in mom's room. Even when I reported the neglect shown on camera the agency did not care. I miss my mom so much. I did the best I could with limited help and resources. Family and the church would offer help but just out of courtesy. Mom stared at me one day and I asked her was she wondering who I am. She said yes. When I told her I am your daughter she weeped. Broke my heart. The other time I regretted telling mom the truth was when her last sister passed away. She mourned and was grief stricken. This started her big decline. After Mom left I became ill as I concentrated so much on her care I didn't do a good job caring for me. But that is what I wanted to do. Give Mom all I could to take care of her needs. God knows my life will never be the same. This hole in my heart still hurts. God bless all the caregivers who sacrifice so much for their love one.

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Replies to "I cared for my sweet Mom from 2015 to 2021. She passed away 2 weeks after..."

It's important for care partners to care for themselves as well as their loved ones. Alzheimer's is bad enough without becoming a martyr to it. I agree that not enough support is available and I suspect the situation will only get worse as the baby boomers get older and live longer. I'm a baby boomer myself, caring for my baby boomer husband, and I worry so much about what lies ahead. I love my husband, probably more than ever, but I'll do everything I can not to sacrifice my own life and health. I do have family and good medical support, but many don't. Caregiving is more than families can do on their own and more than churches are equipped to do. When the baby boomers had babies, daycare centers popped up all over the place. We need a similar push today for more senior centers.