Connect
← Return to Small fiber neuropathy?
Discussion
Neuropathy | Last Active: Mar 22 8:37am | Replies (131)
Comment receiving replies
1) Does anyone with SFN have it really bad where the pain is also in your abdomen/pelvis? And, 2) Does anyone with SFN also have Gastroparesis? If so, would love to hear your experiences. My Dr recently put me on Lamictal to try and quiet down the raging pain (and it worked), but sadly had to give it up due to a nasty skin rash. 🙁 Sad day. He said it's really hard to "prove" nerve pain in those regions, but it can definitely happen if the condition is severe enough. Asking bc my current Dr's are stumped re: plan moving forward & how to help me. An individual on another board mentioned "a mental shrug" and I'd say that's appropriate here in my case also. Thanks y'all.
Replies to "1) Does anyone with SFN have it really bad where the pain is also in your..."
Connect
Hi @rivermaya34, I haven't been diagnosed with Gastroparesis but do have some of the symptoms - constipation which seemed to get worse following a painful colonoscopy 3 or 4 years ago and bi-lateral inguinal hernia surgery a couple of years ago. I don't have the pain but sometimes cramping and some gas. I use some teas I found on Heather's Tummy Care site along with her fiber that have helped some. There is also some treatment information that you may find interesting if not helpful - https://www.helpforibs.com/footer/treatments.asp.
I had my annual checkup in January and told my PCP I would schedule a colonoscopy in April but I'm in the process of re-thinking whether I really want to go through it again at 82.