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@survivor5280 ....I'm still learning how to navigate the site and haven't found the message option yet. If I were to message you ( you can obviously message me and I can reply ) I would probably ask why you felt 9 consults was necessary (note : I'm certainly not questioning your thoroughness or self -advocacy, rather what prompted it ).

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Replies to "@survivor5280 ....I'm still learning how to navigate the site and haven't found the message option yet...."

The mail icon in the upper right of the page, next to the bell icon letting you know you have replies, new topics and reactions is what you use to message someone. Or click the blue text next to a name and you can view the profile and send a message that way.

I did 9 as a "no stone left unturned" methodology. I did it because there are so many paths one can take on this that I wanted to talk to one of each discipline from three different cancer centers of excellence, so it became 9.

As to why I mentioned self advocacy is mostly from reading sites like this one, where so many people told me "urologists want to cut, oncologists want to radiate" (which was untrue in my case) and there are so many options, like TULSA, that I wanted to know the answers to. I had one chance to do this correctly. You read horror stories on these sites, I wasn't going to gamble.

This is just who I am. I don't just take news and wait for the outcome, I spend a lot of time and effort investigating every possible option and finding what, if anything, I can do to impact the outcome myself. When I got PC I was scared out of my pants, the thought of life with a dead fish in my pants and wetting myself was not what I considered "quality". I was literally booking professionals of all sorts, in and out of the medical profession, the day after I got my Decipher score and looked up what it meant.