← Return to 24-hour 5-HIAA reliability for diagnosing NETs

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@tomrennie

In my experience, no test is conclusive or inconclusive unto itself. I personally have had the 5-HIAA test. My oncologist views it as a small part of the plethora of tests and scans he reviews in diagnosing and treating cancer. I was diagnosed with a pancreatic neuroendocrine tumor that spread in 8/2022. I have been on chemotherapy since. I have had the 5-HIAA test once during the very beginning of treatment. My doctor dismissed the results as "insignificant". What other tests/scans have you done?

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Replies to "In my experience, no test is conclusive or inconclusive unto itself. I personally have had the..."

Just now saw your response. Besides the 5-HIAA test, I had an abdominopelvic MRI with contrast, which was negative. My bloodwork (CMP and CBC) was normal, so the nurse practitioner said this rules out all metastatic cancers. I wonder if she's correct. My only other imaging order is a CT with IV contrast; it hasn't been completed yet. Meanwhile, I haven't gained weight, though I'm trying; and I have the same symptoms.