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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Apr 17 10:23am | Replies (671)
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@drawlings0803

Hi Lori - I told you I would let you know my bone marrow biopsy results. Just got a call from the Dr & she said I had MDS/MPN. I will be seeing a hematologist in the Texas Medical Center, about a 40 minute drive from where we live. I could go to MD Anderson, but my Dr felt like going to the Methodist Hospital would get me in sooner & get treatment started.
Just wanted to update you.

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Replies to "Hi Lori - I told you I would let you know my bone marrow biopsy results...."
Lori, Volunteer Mentor | @loribmt | Mar 20 10:25am

Hi @drawlings0803 It’s a good thing you had the biopsy so that your doctor could get a firm diagnosis for you. Now you can start the treatment you need to get ‘back to business as usual’. As @katgob mentioned, there are different levels or subtypes of MDS. Some variants don’t require a bone marrow transplant and can be managed with medications. So your meeting with the new hematologist will be informative for you.

You probably have some questions for the doctor. I’ve found it can be really helpful to write them down in a little notebook that you can bring along to your appointment. I tend to get off track easily and my notebook is great for not forgetting my questions. Also, taking a loved one or friend along is a good idea for an extra set of ears. ☺️ Being larger medical facilities I think either TMC or MDAnderson are great choices for your care.

Thank you for this update! I hope you feel comfortable with your new doctor and look forward to more updates. Is your next appointment scheduled yet?

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