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DiscussionHow many autoimmune diseases can you have?
Autoimmune Diseases | Last Active: Mar 20 7:37pm | Replies (32)Comment receiving replies
Replies to "Have you looked into igenix in California for blood testing of Lyme disease and Co infections..."
I was extensively tested for Lyme about 10 years ago because yes a lot of the SXs are like those of Lyme Disease. The tests were processed at the Mayo Clinic in Rochester, all negative. A flow cytometry was done on the T & B cells, also processed in Rochester. Basically I have the T & B cell make-up of someone with end stage AIDS, which they are always discreetly asking me if I'm okay with them testing me for HIV. Yes yes yes, do whatever you want, I say because I know that it'll be negative, & it is negative. I practically have zero NKCs...it boils down to that I can't make antibodies. Covid vaccines are a waste on me. Instead the 3 that I have had always resulted in Shingles though I was vaccinated against Shingles. But as I now know, vaccines do nothing to induce the production of antibodies. I'm almost 72, so I had all the childhood vaccines & boosters but that was many many decades ago & I probably need a measles booster but I sure won't be getting one because it'll just give me measles. I'm catching weird infections like Tom Hanks in "Philadelphia." I have these small growths all over my back. The largest one, 0.8cm x 0.6 cm, was removed & BXd. I now wish I'd gotten it BXd at a major hospital in the US. Too late now. The path lab said it was a dermatofibroma but after my own research I see that dermatofibromas are easy to confuse with soft tissue sarcomas. I've got smaller ones all over the back but this one had been growing for 10 years & everyone was saying oh it's just a mole but it never looked like a mole. Being on the back meant that I easily forgot about until it started itching now & then. It had a long root & was the best one to BX. Of course the sample is gone now & the others are so small. But what bothers me is that every time something is BXd, part of the findings always say "lymphocyte invasion." The lip BX for Sjögrens, the thigh muscle BX for Polymyositis, which interestingly was also positive for Dermatomyositis (nothing to do with dermatofibromas btw), it's always lymphocyte invasion that is messing up everything, taking over everything, um, & killing everything else, 😶, um 😐 like um, the C word? I've got other tests that have findings of lymphocyte invasion but right now my memory is shot so I don't recall what the tests were for. My vascular doc (I'm on a NOAC med for blood clot prevention--Apixaban) scanned the legs because I've got painful little bumps everywhere, on the arms too. I thought they were ganglion cysts but he says the ultrasound shows that the fascia is disintegrating (?) & in some places there are actual holes in the fascia & tiny bits of muscle tissue pokes out through the holes, like a hernia, & whenever the muscle moves even a tiny bit, the fascia squeezes the muscle bump. I'm like, say what?? Never heard of that. The little bumps are so painful that if they touch anything at all, the edge of a upholstered chair, a table, anything, I'm screaming. It's been like that for years. Then the bumps go away. But they always come back somewhere. I saw the ultrasound of the fascia on my atrophied legs and the fascia looks horrible. In some places it's totally gone. In other places it's patchy. My arms look like arms of a skeleton, zero fat. No fat protection on the elbows so I have to wear elbow pads. A new brain MRI says I have a cranial CSF leak but it doesn't say where the leak is. WTHeck? I have the postural headaches that go with a CSF leak, plus the vertigo, but sometimes my nose leaks profusely & sometimes it doesn't. My pituitary was flattened at some point by a flood of CSF that came flooding in like a tsunami & squashed the pituitary flat. I have a selar arachnoid cyst in the Sella Turcica and it's gone from a grade 2 to grade 3, filling up with CSF but lol nobody cares! I've also got a bunch of arachnoid cysts behind the R eye, seen on MRI (assumed to be arachnoid cysts but who knows?), & again, lol, nobody cares or wants to find out what they are & could they be impinging on the R optic nerve or the eyelid abductor muscle? And nobody cares! And this is at the best hospital in Mexico, in Mexico City, the American British Cowdray Hospital. I'm coming up NOB (north of the border) soon, to visit family in OR, hopefully I can get someone interested to find out what all this stuff is. Because nobody here cares! Something new is always showing up every few weeks now. I don't know what to make of it all or even who I should see. I'm so worn out from advocating for myself for over 30 years now, since I first got SXs of Multiple Sclerosis in my early 30s. I've got just about everything now. Grrrr 😖