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@kathy74

Hi, I'm Kathy. I am 74, soon to be 75, years old. I have pancreatic cancer stage 4. I was diagnosed in Sept. 2024. I have been on Gemzar and Abraxane. Today my doctor, husband and I have decided to drop Abraxane from my schedule. Also we have discontinued the 19-9 test because my body does not register it. I am 2 weeks on and 1 week off. The reason we are discontinuing the Abraxane is because of severe flu like symptoms, severe bone pain, not being able to focus on things and being unable to do physical things for at least 4 days out of the week. I also suffer from neuropathy. I had a scan in Jan. and it showed the tumor, which is in the body and tail, shrank 1/2 inch. I am getting another scan in April. The doctor said that the Gemzar will maintain the tumor but it is inoperable because it is entangled in many blood vessels. He said it has invaded the entire celiac axis and there is little chance of survival. I am ok with this disease because I have accepted the outcome. I live day to day without thinking of it and now that the Abraxane is being stopped, I will be able to live a more fuller life.

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Replies to "Hi, I'm Kathy. I am 74, soon to be 75, years old. I have pancreatic cancer..."

Kathy, Welcome to the group. I wish you all the best in the journey--it sounds like you've found a place of acceptance. Of course, there may be twists and turns ahead!

Regarding the CA 19-9, my oncologist has said that some folks aren't "secreters", i.e., don't produce that antigen. This is from the Pancreatic Cancer Action Network website:

Not every patient with pancreatic cancer will have a high CA 19-9 level.
Some conditions other than cancer can cause high CA 19-9 levels.
The CA 19-9 test cannot be used to diagnose or screen for pancreatic cancer by itself. Instead, doctors often use it to judge a treatment’s success.