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Cromogranina A

Neuroendocrine Tumors (NETs) | Last Active: Mar 19 12:56pm | Replies (7)

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@1libby

My chromogranin has been over 1200 for more than 3 years. Although I have been alarmed about it, my oncologist recently ordered a PET and a CT with contrast that showed basically no change in the pancreatic NET that is responsible for the secretion. While I would prefer for the tumor to be removed, I understand that it is located in such a place that I would have life changing results that might be worse than managing the gastrointestinal symptoms now that are reflected in the high chromogranan and gastrin that are both high. I have learned that the oncologists at Mayo are excellent at monitoring each blood chemistry result but you can always send a message in your health portal about this test result.

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Replies to "My chromogranin has been over 1200 for more than 3 years. Although I have been alarmed..."

Hello. Thank you for responding, and I'm sorry for what you're going through. My wife's tumor was surgically removed, with negative margins. T1N0M0. No infiltration into vessels or ducts. According to her oncologist, you're disease-free, with negative CT scans and a Ga68 PET scan also negative. The endocrinologist also said we should rest assured that everything is fine for now, but it's a bit difficult for us to be 100% calm. Best regards.