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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 7 hours ago | Replies (6351)

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@doug162455

My condition is accompanied by a partial paralysis of my left foot. I can’t lift my toe or my foot. I’m also unable to tilt that foot to the left so I have no resistance to rolling my ankle. I can’t steer or point that foot to the left so I often lose my balance when I turn to the left. My care team has narrowed this down to some sort of damage or inflammation of my sciatic nerve at some point in my leg. My next step will be a lumbar puncture and another MRI. I mention this here because, along with the paralysis, I have all the peripheral neuropathy symptoms described in so many of these posts, the pins and needles, numbness, electric shocks, pain. I’m wondering if there’s anyone else who has experienced this paralysis along with their PN.

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Replies to "My condition is accompanied by a partial paralysis of my left foot. I can’t lift my..."

I have it in both legs and arms the paralysis. The only difference is I have SFN, Dysautonomia (causes paralysis), severe axonal sensorimotor peripheral polyneuropathy, and cardiac autonomic neuropathy. The neuropathy moves through your body affecting other parts of the body that have nerves. The doctors don’t tell you about it. I made a list of each one and what happens. The doctors tell you can’t die from it yet when it moves into your heat the electrophysiologist and cardiologist give you eight years left to live. Medications don’t work for the arrhythmias and blood pressure problems. Just an fyi disautonomia also causes seizures. Which they don’t tell you about until your first couple of seizures. It’s frustrating that doctors are not up front with you.