1. < Prostate Cancer

Gleason 8 diagnosis at 51: Likely opting for surgery

Posted by topf @topf, Mar 13 6:57am

I just got diagnosed with a Gleason 8 cancer and I am only 51. I think I will opt for surgery, but not 100% sure.

I would like to share my results and see if anyone is/was in a similar situation and could share their experience:

A total of 7 or 8 (with second opinion) positive cores out of 14.
3 are low volume gleason 6, 1 high volume discontinuous gleason 6.
One high volume discontinuous 3+4 with only 5% pattern 4
One high volume 4+3 with 70% pattern 4
Two low volume (10%) Gleason 8
Negative mpMRI
Negative psma
Decipher 0.2, low risk

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

surftohealth88 | @surftohealth88 | Mar 17 11:20pm
In reply to @brianjarvis "I had my proton radiation treatments during April-May 2021 (with 6 months of Eligard and SpaceOAR..." + (show)
@brianjarvis

I had my proton radiation treatments during April-May 2021 (with 6 months of Eligard and SpaceOAR Vue injected).
> Side-effects from the proton radiation —> I only had 1 day of adverse side-effects during my 28 sessions of proton beam radiation treatments. On the 3rd day of treatment, I had urinary issues. My RO told me that with some men there’s an inflammatory response to the radiation, and if that inflammation is near the urethra can cause the issues that I was experiencing. He recommended that I take 2 Tamsulosin/day for the remainder of the treatments. Everything cleared up by the next day; I haven’t had any issues since. My “recovery” from radiation treatments was uneventful. (My wife later told me that if she hadn’t known I was undergoing radiation treatments, she wouldn’t have realized it from any change in me. The short amount of time that I was gone each day for treatment were no different than any other time when I simply left to go shopping or to the gym.)
> There are currently 46 operating proton centers in the U.S.: https://www.proton-therapy.org/map/
> If you have to travel for treatments, Hope Lodge communities across the country provide a free place to stay during treatment so people with cancer can focus on getting better. —> https://amp.cancer.org/support-programs-and-services/patient-lodging/hope-lodge.html
> At treatment, I had PSA of 7.976, localized, Gleason 7(4+3).

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Brian thanks so much for finding time to write such detailed response and for including links for lodging and all - I am very grateful and your post gives me much hope in general. My husband has almost exact PSA (his is 7.5) , Gl. i 4+3 but unfortunately he has some duct involvement 🙁 and some cribriform but we will see what PSMA PET CT shows and also second and third pathology consult that will hopefully happen soon.

REPLY
topf | @topf | Mar 18 9:54pm

Different question: Does anyone know who are good contacts for a second reading of my mpMRI and possibly PSMA? There are websites, but I am hesitant since you cannot know who they will send it to. I eould want someone very expetienced.

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1 reply
jeff Marchi | @jeffmarc | Mar 19 10:38am

Info on what you’re looking for

After ambiguous results the pathologist suggested a second opinion. He turned to the Top Gun of Prostate Pathology: Jonathan Epstein, MD, the guru of Gleason scoring

Dr. Epstein Has opened his own second opinion practice in New York City.

World-renown uropathologist Jonathan Epstein, MD, has launched details about his new practice Advanced Uropathology of New York: Global Consultation Services in New York City.

Advanced Uropathology is affiliated with Integrated Medical Professionals, PLLC, (IMP) (https://www.imppllc.com/about-imp-2/), a subsidiary of Solaris Health. http://www.solarishealthpartners.com,.

He charges a consultation fee of $450. Sign up for a consult here: https://advanceduropathology.com/consultation/

REPLY
1 reply
jeff Marchi | @jeffmarc | Mar 19 10:38am
In reply to @topf "Different question: Does anyone know who are good contacts for a second reading of my mpMRI..." + (show)
@topf

Different question: Does anyone know who are good contacts for a second reading of my mpMRI and possibly PSMA? There are websites, but I am hesitant since you cannot know who they will send it to. I eould want someone very expetienced.

Jump to this post

I posted this twice because the first time I forgot to hit reply.

Info on what you’re looking for

After ambiguous results the pathologist suggested a second opinion. He turned to the Top Gun of Prostate Pathology: Jonathan Epstein, MD, the guru of Gleason scoring

Dr. Epstein Has opened his own second opinion practice in New York City.

World-renown uropathologist Jonathan Epstein, MD, has launched details about his new practice Advanced Uropathology of New York: Global Consultation Services in New York City.

Advanced Uropathology is affiliated with Integrated Medical Professionals, PLLC, (IMP) (https://www.imppllc.com/about-imp-2/), a subsidiary of Solaris Health. http://www.solarishealthpartners.com,.

He charges a consultation fee of $450. Sign up for a consult here: https://advanceduropathology.com/consultation/

REPLY
topf | @topf | Mar 19 10:45am
In reply to @jeffmarc "Info on what you’re looking for After ambiguous results the pathologist suggested a second opinion. He..." + (show)
@jeffmarc

Info on what you’re looking for

After ambiguous results the pathologist suggested a second opinion. He turned to the Top Gun of Prostate Pathology: Jonathan Epstein, MD, the guru of Gleason scoring

Dr. Epstein Has opened his own second opinion practice in New York City.

World-renown uropathologist Jonathan Epstein, MD, has launched details about his new practice Advanced Uropathology of New York: Global Consultation Services in New York City.

Advanced Uropathology is affiliated with Integrated Medical Professionals, PLLC, (IMP) (https://www.imppllc.com/about-imp-2/), a subsidiary of Solaris Health. http://www.solarishealthpartners.com,.

He charges a consultation fee of $450. Sign up for a consult here: https://advanceduropathology.com/consultation/

Jump to this post

Thanks!

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