Yes, after I heard this announcement I contacted my Nephrologist at Mayo through the portal. The response was that I was not at the stage to be evaluated. I've been stable, I feel good, exercise and I am not tired. I eat very little meat, mostly beans, fruits, veggies, etc. I drink massive amount of water, 60-70 oz a day. My disease is nephrogenic diabetes insipidus so water is important. Now I wonder at what stage is the evaluation? I've decided I do not want to go on dialysis, but my cousin who is a nurse at Johns Hopkins said if you're not on dialysis your in the B order, not A. Meaning A's go first. But if I have a living donor, why should that matter? I don't have fluid overload...yet and I do not have proteinuria. The only bad bloodwork is my eGFR, BUN, creatinine (obviously). The rest is normal, taken every 3 months.
I'd really like to know what the evaluation is like. The message said it's very involved. My weight, 137, my BP hovers around 117/68, changes a bit. I am not diabetic, as said, my blood sugar, potassium, sodium...all normal.