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Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (17)
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Replies to "Thank you so much I have a Neuroendocrine carcinoid also but thank for reaching back out."
Hi, I had 1.5m of my ileum removed 2022 due to nets. Was in hospital for 6 days as needed me to do a bowel movement before leaving hospital. Pain wise was not too bad did feel pain at times months after surgery. I had to adjust what I ate as some foods did cause gas pain to occur. I now have lesions on liver which my medical team (I live in Australia) are keeping an eye on. I have no other treatment for now. Good luck