Anyone diagnosed with Gallbladder cancer?

Posted by pgf @pgf, Jun 29, 2021

Any one here had this diagnosis?

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I have been diagnosed with Gallbladder cancer. Already had surgery to remove the T4- Stage 4a tumor that invaded half my liver, a portion of my intestines and bile ducts which were all removed. I’ve never even heard of Gallbladder cancer before I was diagnosed. They want me to start on Xeloda and then after 4 months on chemo they want me to start on both Xeloda nd radiation. I feel very ALONE with this diagnosis as only 2 in 100,000 people get it and very AFRAID bcz of the poor prognosis. Can ANYONE relate???

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@colleenyoung

Hi @pgf, welcome to Mayo Clinic Connect. Have you been recently diagnosed with gallbladder cancer?

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Yes

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@theresamoh

I have been diagnosed with Gallbladder cancer. Already had surgery to remove the T4- Stage 4a tumor that invaded half my liver, a portion of my intestines and bile ducts which were all removed. I’ve never even heard of Gallbladder cancer before I was diagnosed. They want me to start on Xeloda and then after 4 months on chemo they want me to start on both Xeloda nd radiation. I feel very ALONE with this diagnosis as only 2 in 100,000 people get it and very AFRAID bcz of the poor prognosis. Can ANYONE relate???

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I hope you find a sense of community here and can start to feel less alone. Your situation sounds complex and challenging. One day at a time, as they say. While the prognosis in general may be poor, that doesn't mean YOUR prognosis is poor. Try to not let your fear rule the situation. Expect answers from your health care providers, gather information, and make decisions based on the reality of your situation. I have to have my gallbladder removed on April 2, and I, too, am worried about gallbladder cancer since it is a higher risk because of my genetic mutation (Lynch Syndrome). Let's both hope for the best and face whatever we have to face. I hope others will join the discussion and offer you some support. You will be in my thoughts.

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Thank you for responding and for thinking of me. Yes, let’s remain positive!! Mind over mater! I used to work for the American Cancer Society and never heard of gallbladder cance bcz the estimate only 2 people out of 100,000 people get it.. Hopefully there are those few survivors out there that lived to tell about it and what treatment they had to kill it Al. Please share if you have had this aggressive cancer.

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