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DiscussionIs PSA rise inevitable after hormone therapy?
Prostate Cancer | Last Active: 5 days ago | Replies (45)Comment receiving replies
Replies to "I'm interested in the IRONMAN study. Where can I find out about it?"
IRONMAN is a tracking registry — the Cancer Centre enrolled me right after diangosis (after asking permission). It involves a few extra blood tests and filling in an online survey every 3 months on my side, and extra reporting on the Cancer Centre's side:
https://ironmanregistry.org/
In Canada, we participate through the affiliated TrueNTH initiative.
The main implication for me is that the Cancer Centre has to keep testing me and seeing me every three months as part of their side of the committment (and do a little extra paperwork — they have a guy who manages studies full time). Otherwise, my oncologist said I could have dropped to 6-month monitoring, since my remission has been stable for a few years, but I prefer 3-month intervals anyway.
Apparently I could also get free parking for my hospital visits related to the study, but I've never asked (and prefer public transit anyway, since it's fast and easy in my situation).