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Autoimmune Diseases | Last Active: Mar 31 1:15pm | Replies (32)

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@januaryjane

Oh and you do need to do your homework and learn more about possible conditions and what your tests mean. It's smart to be an advocate because most doctors don't have the time to do that for all of their patients. My advice when bringing your new found wisdom to doctors is to tread lightly. Most people don't want to be told what to do so I've learned to weave my symptoms, test results and any new knowledge intricately into an in person conversation at my visit. It's about timing and feeling desperate but not acting desperate. If that makes sense.

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Replies to "Oh and you do need to do your homework and learn more about possible conditions and..."

Yes, I’m learning that they do not like the fact that I do my own research. I recently Asked my gastro about using different supplements (L-carnosine) to help heal my stomach lining and she laughed me off. I was put on a PPI and it gave me terrible heartburn which I never had before and I was told to stay the course. Stayed on it for a month and It eventually got so bad I had to take myself off of it. I learn things about my conditions every day as they are ever changing and it’s sad that the docs trusted to treat you aren’t doing the same.