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Got some answers for stage 4 prostate cancer
Prostate Cancer | Last Active: 5 hours ago | Replies (10)Comment receiving replies
Hey Jeff,
It is a new conversation here (at least I posted it as a new post, but maybe I did it wrong)
I've posted a few weeks ago and I think you replied too, anyways.
Yes the Gleason GROUPS were mostly 5s, the scores were 8-10, mostly 8 and 9s and groups 5, a few were 4s.
The ADT shot is just a one time BOOST, then he'll switch over to a pill.
The doctor did mention price and cost with something but I don't remember what it was and changed his mind on certain things too, first he said most likely NO radiation, then did a prostate exam and said it was very abnormal, large and hard so probably radiation would get involved months down the road.
PSA came back in the evening and it has gone down a bit, from 251 to 198 BUT some liver enzyme is 300 where normal is 40 I think, I'll have to look at the chart today. He's taking Ivermectin and Fenbentosol and have read it helps PSA but can spike liver enzymes because dead cancer cells goes thru the liver and then it goes into overtime in a way.....I think Milk Thistle helps?
It was just something he tried after the first PSA result and waiting 5 weeks to see oncologist.
The doctor did say that with my husband's situation they used to say "months left" now they say years, that 50% make it 4 years now, of course it depends on a lot of factors.
He's rather "young" statistically, he's fit and eats right- now SUPER healthy, and doesn't have any other comorbidities.....
Replies to "Hey Jeff, It is a new conversation here (at least I posted it as a new..."
The doctors sequence of giving you Degarelix first and then moving onto the pill is a little strange. What puzzles me is that if he’s going to the pill (Orgovyx) It doesn’t have the flare problem so he could start off with that right away. So many people in here have been getting those Degarelix Injections for a very long time, This is the first time I’ve heard of it only being done once. If he didn’t give you that first, he would have to give you biclutamide Pills for two weeks before Lupron.
As for Gleason scores, The highest number is the only one that counts as far as treatment goes. If his highest combo is 4+5, then he’s a Gleason nine, If it’s 2 fives then he’s a Gleason 10. Having a lower score on some cores isn’t relevant.
As for future radiation. The consensus among doctors these days is that the prostate should be removed for people that have had initial spread to other parts of the body. They want to eliminate the prostate as a cause of future cancer spread. When I say removed, I mean either by radiation or surgery, but it’s usually makes more sense to do radiation when it’s already spread.
While his PSA is high ADT, plus Zytiga, Plus chemo is probably going to bring him down to an undetectable PSA. There’s no telling how long this will last, But no doctor can give you a definitive date. Development of new drugs has been pretty rapid, So by the time these drugs stop working for him, there may be new things out to extend his life. The rest of us out here are hoping for exactly that happening.
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Hey bea, for what it’s worth, please exercise caution with unproven treatments like Ivermectin, etc.
I’m not saying that I myself wouldn’t give it a shot AFTER conventional treatment shows no positive effect, but ADT can spike your liver enzymes as well and with the Ivermectin, he could possibly cause liver complications - the LAST thing he needs!
At least tell your doctors he is taking it and listen to what they recommend. Best,
Phil