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Got some answers for stage 4 prostate cancer
Prostate Cancer | Last Active: 43 minutes ago | Replies (8)Comment receiving replies
Degarelix is The worst way to get ADT. The doctor has to give you a shot in the stomach every month. I think they do this because they make the most money off of it. You can get a Lupron Shot every three months or six months and not have to go back so often. It would be even preferable to get Orgovyx, A pill you take once a day.
You say your Gleason Score is all fives. The Gleason score consist of two number, If both are fives, then you have a Gleason of 10 the highest. Is that what it shows for you just two fives or is it five and four
You need to get genetic testing to find out if I could be a factor. Does anybody else in your family have cancer? You can get it here for free, takes 2 to 3 weeks to get the results and a genetic counselor will call you. The link for the free test is
Prostatecancerpromise.org
Don’t check the box that you want to have your doctor involved or it will greatly delay the test. Certain genetic problems like BRCA2 Have drugs that are specifically helpful for those people.
Don’t believe the numbers they give you for longevity, They are wrong so often it’s incredible. Most doctors won’t even give you that guess.
It does sound like you’re getting the right treatment to start with. Too bad you didn’t start this as a new conversation because more people would probably see it and reply to it.
Replies to "Degarelix is The worst way to get ADT. The doctor has to give you a shot..."
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Agreed about Firmagon/Degarelix. It doesn't affect survival prospects (Orgovyx/Relugolix works the same way), but those big monthly Firmagon injections come with very uncomfortable acute side-effects in addition to the normal chronic ones. I noticed a big improvement in my quality of life when I switched to Orgovyx a year ago.
The tricky thing about Lupron (the other alternative Jeff mentioned) is that it causes an initial testosterone flare-up before it starts going down, and the OP's husband's medical team might have considered that risky for his situation — just a guess.
In the U.S., Firmagon is much less expensive than Orgovyx (just like Zytiga is much less expensive than modern ARSI treatments), so again, it would be good just to confirm — politely and constructively — that cost isn't the main reason they're putting her husband on the Firmagon injections.