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Does Infectious Disease need to be part of overall team?

MAC & Bronchiectasis | Last Active: 10 hours ago | Replies (5)
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@carolinediehl

Yes and no. My last visit he opened up more about his training. He said he studied under the head of pulmonology at the Cleveland Clinic in Florida. BE is not his top 5 DX treated. I kind of want a bronchoscopy to at least see if I at least have MAC besides BE. He sees improvement in latest CT and feels there is no sense in a bronchoscopy because he doesn't think I could handle the treatment for MAC. Shouldn't that be my decision?

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Replies to "Yes and no. My last visit he opened up more about his training. He said he..."
Sue, Volunteer Mentor | @sueinmn | 10 hours ago

I would not ask for a bronchoscopy myself unless absolutely necessary. It is an invasive procedure with risks of its own, including potential introduction of new pathogens and bleeding.

Instead of a bronchoscopy, if I were in your situation, I would seek the opinion of a bronchiectasis expert - there are more available all the time, you don't necessarily need to travel to Mayo or NJH.

Have you seen the new list?
https://connect.mayoclinic.org/discussion/the-bronchiectasis-care-center-network-33-centers/
Go here to get an appointment at a center near you: https://www.bronchiectasisandntminitiative.org/Find-Care/Care-Center-Network/Find-a-Center

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