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DiscussionPancreatic NETs: Looking to connect with anyone with insulinoma
Neuroendocrine Tumors (NETs) | Last Active: Mar 21 4:18pm | Replies (86)Comment receiving replies
Replies to "I ended up going to Mayo Clinic for a Whipple Procedure. Went to 3 of the..."
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@jasonrex86 I had distal pancreatectomy, gall bladder and spleen along with RFA in 2025.
After RFA the PET scan showed increased uptake in the liver, but the surgeon explained that this was normal and would decrease. The next scan was better and showed no significant uptake (I also started cabometyx between the scans).