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Possible Sjogrens Disease

Autoimmune Diseases | Last Active: Mar 28 7:11am | Replies (66)

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@bruizersmom

No white lumps.... i have severe IBS/constipation from Parkinson's. No tubes...what are they for? Yes to skin and eye problems, iktchy everything, especially scalp, always a swollen-feeling tongue and consequent not-wanting to eat/inability to eat because of tongue, inside cheek biting, dry-mouth...possibly because of Parkinson's, but who knows, yes to Raynaud's, borderline on the thyroid, and yes, I've heard too many doctors mention my age as a cause for most everything. The motility? I refused a motility test recently, because I was having a bad day : Parkinson's and one too-many botched referrals so I blew up MAD and loud, then cried all the way home, and for the next 4 days. What I seem to consistently have (when consistent applies) is 3 days of violent but short, quick diarrhea (not nearly enough to empty an intestine) followed by 3 days of painful constipation. My belly gave up....it just stays swollen. Always. I'm 76, but I look like a skinny 6-months-pregnant old lady. I live with constant belly pain (and other related places), but consistent partial relief came when I got onto AM treatment: high dose Linzess, plus 2 stool-softener gels, and an anti-gas, then one more stool softener at lunch. I do not take linzess on an empy stomach and then wait...I was told to do the more radical Take with Breakfast by my GI. At least it's tolerable. Hope that helps. p.s. Have you been checked out for Parkinson's? Lots of what I have going on is common among PD patients.

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Replies to "No white lumps.... i have severe IBS/constipation from Parkinson's. No tubes...what are they for? Yes to..."

I had tubes in my eyes to hold tears. Every 6 months, Medicare covers. I use prescription toothpaste and dry mouth mouthwash. Nothing works.
I’m a very rare case. I think this is partly the reason everyone hesitates.
June 2020 in Boston by a very reputable neurosurgeon I had a 3 fusion cervical spine surgery. It took 7 hours. My bowels never woke up from that surgery. I have tried every prescription on the market because they were hoping a med or combo would work. The last to be made is called IBSrella, it also didn’t work. I was scheduled twice for a total colectomy but backed out and here I am almost 5 years later with a colon but living on 20 OTC laxatives, enemas and suppositories and if I’m lucky I might pass unusual looking stool 2 maybe 3 times a week. I just think the anesthesia killed my bowels never which can happen but rare.
I have a lot of other health issues as well.